Orthopedics

Haleigh had her Physical Therapy consult yesterday.  They are very happy with her progress.  They sized her for shorter braces so that she can lift her legs better.  He felt like the old ones are too heavy for her to move around effectivly.  The new ones will only come to her ankle.  He is also sending her to weekly physical therapy.  It will be different then infants and toddlers physical therapy.  This is the real deal.  We will continue with infants and toddlers but mostly for Occupational Therapy.  She starts PT next tuesday.  The ladies that she will be working with sound wonderful. 
Since her speech is behind the Dr. also wants her to get a consult for an assisted communication device.  Basically it is a computer that she will be trained to used to communicate with us.  There will be a way she can say she is hungry, thirsty or whatever else they may want to put on it.  I think it will be interesting.  She understands what we say but she can't communicate it.  She gets so frustrated at times. 
Then the dentist.  Well that didn't happen.  The scheduling lady neglected to tell us that the Doctor that sees babies is not in the office we scheduled at.  So when we showed up they then told us that she needs to be seen in the other office.  Now I have to schedule the appt again.  Silly.

And the best news yet is this morning it got an email from her genetic counselor saying she tested negative for Cockayne Syndrome.  It is very bitter sweet news.  As much as we want a diagnosis, I didn't want that one.  Some of these syndromes are unbelievable.