Big update

Wow i realized it has been a while since we have given an update.  Haleigh is doing pretty well.  She is ready for Christmas and can't wait to be home to see family.  This month she has been accepted into the NIH Rare and Undiagnosed Diseases program.  I am really hoping this will be our answer.  She is doing pretty good with the growth hormone.  She still doesn't like the shot every night but we do our best at making it ok.  There really is no way to make it fun.  She likes to put the meds back in the refrigerator when we are finished.  She seems to have a much bigger appetite.  We should know in January how much weight she has gained since starting.  
She is doing great in Physical Therapy as well.  She got her progress report yesterday and it is amazing to see her progress written on paper.  She had only began to pull herself up on things when we started.  Now she is beginning to cruise.  Her therapist is hoping she will be walking or attempting to stand alone by spring.  Fingers Crossed!!!
Through a friend we found a wonderful girl with a wonderful charity.  Her name is Madison and she hand paints shoes for children with Cancer and other life long disabilities.  She does such an amazing job.  She did a pair of shoes for Haleigh.  Pictures are posted below.  If you know a young one in need of a smile or would like to help her cause you can visit her blog at www.peachsneetfeet.blogspot.com
She does absolutely amazing work!!
Our family would like to wish everyone a very Merry Christmas and a Happy 2012!