Haleigh's Journey

Behold, children are a heritage from the LORD, the fruit of the womb a reward. Like arrows in the hand of a warrior are the children of one’s youth. Blessed is the man who fills his quiver with them! He shall not be put to shame when he speaks with his enemies in the gate.(Psalms 127:3-5 ESV)

Wednesday, December 14, 2011

Big update

Wow i realized it has been a while since we have given an update.  Haleigh is doing pretty well.  She is ready for Christmas and can't wait to be home to see family.  This month she has been accepted into the NIH Rare and Undiagnosed Diseases program.  I am really hoping this will be our answer.  She is doing pretty good with the growth hormone.  She still doesn't like the shot every night but we do our best at making it ok.  There really is no way to make it fun.  She likes to put the meds back in the refrigerator when we are finished.  She seems to have a much bigger appetite.  We should know in January how much weight she has gained since starting.  
She is doing great in Physical Therapy as well.  She got her progress report yesterday and it is amazing to see her progress written on paper.  She had only began to pull herself up on things when we started.  Now she is beginning to cruise.  Her therapist is hoping she will be walking or attempting to stand alone by spring.  Fingers Crossed!!!
Through a friend we found a wonderful girl with a wonderful charity.  Her name is Madison and she hand paints shoes for children with Cancer and other life long disabilities.  She does such an amazing job.  She did a pair of shoes for Haleigh.  Pictures are posted below.  If you know a young one in need of a smile or would like to help her cause you can visit her blog at www.peachsneetfeet.blogspot.com
She does absolutely amazing work!!
Our family would like to wish everyone a very Merry Christmas and a Happy 2012!  
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2 comments:

  1. Gammy/MammyFebruary 22, 2012 at 8:31 PM

    Amanda and Josh, My name is Luann and you sponsored a pair of shoes for my granddaughter Emery. I found your post through Peaches Neet Feet and I have been reading your journey with your beautiful Haleigh. I want you to know that I will be praying that you find some answers as I know the unknown is so scary, but in the mean time, know that you have a 'Mammy' in Texas lifting Haleigh, and you up in prayer. May God Bless You all! By the way, Haleigh is 3 month older than Emery. I bet they would have a great time together.

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    1. Amanda and JoshFebruary 23, 2012 at 6:08 AM

      Thank you so much! It is a wonderful feeling to know that people really care. I love and appriciate the prayers. Haleigh will be happy to have a "mammy" in Texas. :o)
      I am sure the girls would have a great time together. Haleigh LOVES to make new friends. She got a valentine this year from a boy in daycare. It mad me happy and sad at the same time. LOL
      I hope Emery enjoys her "Neet Feet". I know Haleigh loves hers.
      Thanks again!

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