Today we took Haleigh to see her Endocrinologist. Everything is in place for her to start the growth hormone. The FDA requirements are small for gestational age with no catch up by 2. Since she is still very small they are going to file the paper work to get her started. This should take about 1 month. A home nurse will come to our house and show us what we need to do. It will be a shot every day for 6 days and 1 day off. For the next year she will have to get frequent blood work to make sure her levels do not get too high. She will also have her size and bone age monitored. Right now her bone age is at a 1 year level.
What they hope will happen is that she will use the hormone more efficiently than she is now. The doc said she is semi-resistant to it so they hope that with having more available she will be able to receive more into her body. Right now her blood work shows that she is producing normal levels but she is pretty much wasting it.
It is generally a safe treatment. Her levels will be monitored every 3 months so that they can make any adjustments to the dose. If she does not show a response to it, they will stop the treatment.
The next few months we have a ton of appointments. All of her follow ups come around in November December and January. It is going to get crazy but maybe it will help winter go by fast. :o)
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