I am so sorry that i have not updated in a good while. Things have been pretty crazy. As you may know, Haleigh was supposed to go to NIH in late April. However, she got sick so we had to cancel her appointments. She can't be around the other kids while she is sick. Totally understandable. I don't want her to get the others sick, especially the high risk kids. We are scheduled to go back The week of June 25th. Her schedule is still crazy busy but it's all for a diagnosis.
She started speech therapy a few weeks ago. She has not done much yet, but Josh and I are getting a lot of info from the therapist on ways we can help her at home. We are trying to get an I pad through insurance to use as a communication device. It is amazing what these things can do. I never realized how much they can help. Hopefully insurance will pay for the I pad and the speech therapy apps as well. Most of the apps are around 200$ but from what I hear are very worth it. If insurance will not pay we will try a grant or just suck it up and pay for it ourselves.
Physical Therapy is going great. She is starting to get the ability to balance herself for a few seconds and will take a step with a controled stop. Balance seems to be the biggest issue. She will walk with assistance anywhere. She is learning to steer her walker. Therapy uses a trail behind walker that has turning wheels so it makes it easier for her to steer.
The most overwhelming thing we have going on right now is getting her set up to start school when she turns 3. She will start in a school for children with special needs. During her day she will not only have education, but she will also have PT, OT and speech therapy. I beleive the program is 3 days a week for 2.5 hours a day. There is so much that goes with this school. We are working on her education plans for when she starts. And we have to go to the school for an evaluation so that they can determine eligability and needs.
Thats all for now. I will definatly update you all on NIH.
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