Neuropsych evaluated her to see where skills are based on milestones. She did much better with this than she did with the infants and toddlers evaluation. It was a much better environment so Haleigh was able to focus better. She said she can tell that Haleigh knows how to perform tasks, but her motor control is keeping her from doing things. She was given some exercises to help with this stuff and she will be starting occupational therapy soon.
Audiology did a hearing test. He said he feels like she has at least mild hearing loss which could be impacting her speech. He said it is probably caused by all of her ear infections. ENT just checked to see if her tubes were still in place. He didn't have much to add to the cause.
She saw Dr. Gropman from Neurology. She saw her before at Children's. She was very pleased with her progress and just wants to get her started with OT to get her fine motor skills refined.
Physiatry checked her foot braces and her mobility in her joints. He said she has really loose ligaments and a lot of movement in her knees and ankles. Also in her elbows and hands. He said she is strong and doing great with her movements.
Today she had PT which was nothing new for her.
She also had a photo session so that the genetics docs could get some shots of various body parts.
Blood work didn't go so well. She lost her entire breakfast because she got so upset. They got what they needed and said if they decide they want more they will get it when she is sedated tomorrow.
The eye doctor said her eyes look good. She is using both of them together. He did say her corneas look small so he did photos too. He will also be doing an eye exam under sedation tomorrow.
Considering how much she has been through, Haleigh is holding up really well. Aside from throwing chow in the lab, she has been very cooperative.
Her MRI got moved to 0800 so that will make not eating much easier.
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