NIH Day 2

Today Haleigh got her very first government issued ID.  I am still unsure why she had to get one, but they said she needed it.  Silly!  
She started her day with a speech pathologist.  She did a swallow study on Haleigh.  Apparently Haleigh has to do some tongue exercises.  I have no idea how you exercise a tongue.  My degree in fitness did not cover that one!!
She next met with an occupational therapist.  She just wanted to see where Haleigh was behind.  She said she is delayed but she is on the right track to getting better fine motor skills.  
Endocrinology was a consult and we will see the actual doctor later in the week.  I don't know when because it is not on our schedule.  
She had pre-anesthesia which was the doctor making sure she was healthy enough to be put to sleep for such a long period of time.  Her heart condition is the main concern for them because they do not want her to lose oxygen while she is down.  They prefer to have her breath on her own instead of using a machine.  She will not go any longer than 3 hours.  I didn't realize how many tests they were doing.  They will look at her brain, eyes.  They will also do a skin biopsy and there are two other tests that were a bunch of letters put together and i don't remember them right now.  
The immunologist came to rule out a primary immune deficiency which he said he doesn't believe she has.  Even though she gets sick often, she can get better on her own, or without much more than an antibiotic.  He was great.  He explained things really well.  He will be ordering blood work just to be sure.  
Haleigh held up pretty well.  The last appointment was hit or miss but we let her play in the sink so she was happy and wet!!